Ian about Si

Our nightly ritual since we've had kids is READ, SING, PRAY.  Every night.  We sometimes get lazy or it gets too late and we don't READ, but we ALWAYS SING AND PRAY.  Ian is especially dependent on those 2 things.  His 2 songs have always been Jesus loves the little children and "have I not commanded you".  So to mix things up some nights I will substitute children for one or all of their names.  The other night, I sang ".....all the Si, Si's of the world...."  After we finished, I could Ian was deep in thought.  He finally looked at me and said, "I think Jesus must REALLY love Si and kids like him...you know, with Down Syndrome."  I asked why.  He says, "I just think they are special.  I think he thinks they are really special"  I told him that Jesus thinks all children and special but I think he is probably right.

I'm so thankful for how my sweet kids show their love for Si.  Even Seth is in love with him.  Ian is different because he "gets it"... he has some understanding of what is a head for Si and he seems to be preparing to be there for him.  It's so cool to be able to see your kids' hearts changing.

Shoot! Shoot! Shoot!

Lily had a blast at Basketball Camp!  

Wisdom by Ian

Ian and a friend talking about a space pod that can zoom to planets for the day.  I wanted to be involved in the conversation so....

Me: I'd make a pod that zoomed to Heaven!

Ian: It's called death, Mom.

Me:  .....

Dinner Prayers by Seth

"Dear God, Thank you for the food, for momma, Lily, Ian, Daddy, ian's fork, lily's fork, the food, the corn....yea, the corn.  Thank you for momma's fork... Amen"

Last night's catch up.

"Dear God, thank you for the food, for Lily, Ian, Lily, Ian, Daddy, Lily, thank you for lily's tea, Ian's tea, momma's tea, my tea..... I WANT ICE! ....Amen"

Coolest girl ever.

Ok. So lily tells me that this is the cutest character on the show Kickin'It that her and Ian watch.  

I'm confused because she likes him over.....

I think I might have the coolest girl ever. 

OT Impression

We had our 2 week OT visit yesterday and I was happy to see that Si Guy impressed her!  He's been working so hard, so I was so proud of him.  He was very tired when she came so he didn't even do his best.  He almost rolled from his back to front.  He's also been putting some weight on his legs.  I was remembering a site that I had read when he was first diagnosed... or maybe before... but it said that Downs Syndrome was filled with milestones and how much more exciting it was for families with Down Syndrome babies when you hit those milestones.  I thought that was a little crazy-positive at the time.  But I know exactly what they mean now.  I notice the smallest things about Si's development.  And it is so much more exciting with every bit of progress that he makes...maybe because I can see him working so hard or maybe all the focus that we put onto each bit.  All I know is that he is the perfect baby for me.  I love goals, short term or long and it's so fun to watch him and work with him.  I look forward to the visits from Jessica, his OT.  We have new exercises most weeks and have new goals to strive for.  I love how proud he looks when we all clap and praise him.  He's so freakin' awesome! I can't stand it!

Bursting through my door at 12 am....!

"Mom, am I having a dream or is there a polar bear in the neighbor's yard?" - Lily